The next month

So, a whole month has gone by and more after the last medication was administered to V. He is doing just fine under the circumstances. His brain seems to be taking leaps in catching up with all of the deprivation so it seems. For example, he is obviously learning compound words in school. I had no idea till he asked me if journalism is a compound word and we talked about the differences between compound words and words with suffixes and prefixes. So, the day went on and then towards the end of the day we were watching something and then he suddenly goes well, boyfriend is a compound word and so is girlfriend. I mean things like this are miracles to say the least. Not only is he able to absorb what is being taught in school but also, he is able to retain the information, think about it actively, relate it to other things he is experiencing and connect. I mean, that is so wonderful, I would have never dreamed of it. These are small, simple pleasures that keep me going.

He loves school, his teacher this year is so very understanding of his needs and accomodations, it is absolutely wonderful. Not only do I not have to ask for anything, on her own, she realises and lets us know about assignments that he will need more time. He is really happy, is just so getting back to his old self. I mean, he was happy through his bad times but now, he just seems differently happy.

I still worry when he gets emotional or worked up because he used to work himself upto a frenzy so that he would get seizures. He was highly worked up last night and it took me over half an hour to calm him down, all along worried that he would work himself upto a frenzy. All along, I need make sure that I keep calm, that I don't show him that I am worked up, that I have a calm voice and hand, all along soothing him to ensure that he gets the right message. He does have to hold it up in school and that's why he tends to have more of these meltdowns at home which is kind of alright given that he can only do so much and physically he is exhausted by Friday.

R does show signs sometimes of jealousy, despite an effort on my part to try to stay fair. Every once in a while she needs a reminder that not everyone's brain is like hers and that there is some accommodation she needs to make for his differences. It is a high expectation of her and it does seem unfair sometimes when one sees other ten year olds who do not carry the same responsibility but then why should everybody undergo anything similar?

Meanwhile, life carries on. Diwali and Halloween just went by. Thanksgiving will be here soon.