Sunday, March 16, 2014

Odds and Ends and Indian society

One of my college friends decided to post the links to my blogs. So the blog saw a lot of traffic these past 24 hours. I have been blown away by some of the responses and reactions. There are so many good and sensitive people out there, so many who have their own share of problems. Over the years various people have reached out in ways that have been really touching. Even folks spending time reading about V's journey is impressive. After all, why should anyone spend their own time and energy on something that is not their own? 

Through all this, one of the things I have always maintained is to believe in one's child. Of course, there are situations which are different. The believing might be within certain other boundaries. For instance, a friend of mine has two boys who are autistic. She has handled their situation with a lot of grace over the years, been really strong and practical from what I can see. The fact that she has been working on alternatives for her boys, knowing that they probably are not going to go through a four year college, and handling it all so well has been an immense source of inspiration. 

Even though Indian culture dates back to thousands of years, there is so much that we Indians tend to club under the cultural bucket as not allowable is simply callous. The fact that a child has to struggle under the existing school system in India without support, assistance and services that may be needed in certain cases, and the fact that parents have to accept and support the child and work with family members to have them also accept the situation, as well as continue to shield their child from psychological harm because he/she is not an "A" student is a great deal of burden to carry. It is one that needn't be that way. Together, we all need to start changing that society, no matter which geographical location we may be situated in.

6 comments:

Anonymous said...

Hi there - my name is John and I am from the charity Young Epilepsy in the UK and would love to speak to you about some work we're doing. Could you please email me at communications (at) youngepilepsy (dot) org (dot) uk

Unknown said...

Smita you're so right, I'm Indian (my dad was born there) and my epilepsy stops me from doing medicine because it's just not controlled. But that's not good enough and it's a big battle! Indian culture needs to recognize and become more aware of epilepsy. Good luck with your son.

Cynthia Maher said...

Hello, My name is Cyndi. I have had Epilepsy since I was a child. I am very interested in connecting with others with my condition and with their families. I am writing a book about my experiences called Seizure Free and Loving Life. I have been blogging about it as well. I wonder if you would be interested in doing s guest blog. If so, please contact me at cyndi.maher@gmaildotcom

Ivy said...

After years of being seizure free, I think I owe the world a duty to share this testimony. It could help someone out there who needs to be free from seizures like me.
It started as a minor seizure. I was scared when I had my first seizure. First it was at the tonic phase till it became more complicated that I woke up in ER. That was when I was 9 years old. I had questions without answers. My friends who never understood what I was going through abandoned me because they were shy, and too embarrassed to associate with me. The seizures became frequent that I had more than 50 seizures a day. For 31 years I took thousands of Western Medication. It got more complicated that I had to make effort so it will not become epilepsy according to research. I went in search for a cure because I was feed up of treatments and drugs. A lot of folks told me there was no cure to seizure; that the best I could get was treatment to manage it, but I just refused to believe them. Thankfully, I read about Herbal medication for seizures and epilepsy cure. I discussed with my doctor, he permitted me to try if it will work because Western Medication had dealt with me badly. When I started using Herbal Medication the seizures was longer frequent! Within a one month, I noticed tremendous changes I never had for 30 years of using English Medicine. After several months of using Herbal medication, I became totally seizure free. For 5 years and counting, I have never had seizure not even for a second. I have been reaching out to people with seizures telling them my story how they can get cured through Herbal medication that worked for me. I got my herbal medication from Doctor Mohan. You may contact the doctor via drajaymohanbose@gmail.com

Ivy said...

After years of being seizure free, I think I owe the world a duty to share this testimony. It could help someone out there who needs to be free from seizures like me.
It started as a minor seizure. I was scared when I had my first seizure. First it was at the tonic phase till it became more complicated that I woke up in ER. That was when I was 9 years old. I had questions without answers. My friends who never understood what I was going through abandoned me because they were shy, and too embarrassed to associate with me. The seizures became frequent that I had more than 50 seizures a day. For 31 years I took thousands of Western Medication. It got more complicated that I had to make effort so it will not become epilepsy according to research. I went in search for a cure because I was feed up of treatments and drugs. A lot of folks told me there was no cure to seizure; that the best I could get was treatment to manage it, but I just refused to believe them. Thankfully, I read about Herbal medication for seizures and epilepsy cure. I discussed with my doctor, he permitted me to try if it will work because Western Medication had dealt with me badly. When I started using Herbal Medication the seizures was longer frequent! Within a one month, I noticed tremendous changes I never had for 30 years of using English Medicine. After several months of using Herbal medication, I became totally seizure free. For 5 years and counting, I have never had seizure not even for a second. I have been reaching out to people with seizures telling them my story how they can get cured through Herbal medication that worked for me. I got my herbal medication from Doctor Mohan. You may contact the doctor via drajaymohanbose@gmail.com

Unknown said...

My son was diagnosed with epilepsy at the age of six and had become quite recluse, I was terrified. “His seizures have never been fully controlled as he had grand mal seizures, collapsing and twitching on the ground. As a little kid, I find each one haunting—as if some outside force has taken over his body, leaving me, the person who is supposed to protect him, powerless. It was 2012 and over the previous three years I had spent more time in hospital than out of hospital. This point in time was, looking back, perhaps the low point of my life. After nine years we were out of options. We met with his Doctor to get permission to try a herbal treatment as we needed to end all Conventional Medications. Though we didn't know if it Would make him vomit or become dizzy, or give him a rash or cause some other unpleasant event like some medics he used to take? We didn't know. We’d volunteered to give a trial for him to live a better life. We were confident the medicine wouldn't kill him or hurt him irreversibly, but the prospect still made us nervous. Although family and friends may feel this is a loss of the person they knew, the illness can be treated and a good outcome is possible as it all got better when we started using a herbal medicine for him.

My recommendation to people who are either wondering if they have epilepsy or wondering if a friend or loved one has epilepsy should contact aparajitatan@gmail.com. I think one of our key problems was that we didn't do this in the early days of my Son's illness as we never thought of a natural alternative for him.